After many attempts at diagnosing our baby's symptoms the results are officially in and she has an unknown diagnosis. All they can really tell us is that it is not genetic or chromosomal and they have ruled out all trisomy's and tubal defects. Unfortunately the testing raised more questions than answers and we are at a dead end.
The plan is to continue to do ultrasounds every 3 weeks to monitor the progression of her hydrocephalus and single umbilical artery. If she makes it to the third trimester, they may attempt to do shunting while she is still in utero to give her more of a chance at life. The prognosis is still very poor, but they can't give us much to go on.
So with the very few details I have let me tell you what I do know. We have our daughter right now and for now we are happy. It doesn't mean we are are ignoring the future, we are just content with what we have now. We will deal with whatever comes our way when it is time. And at that time, Travis has promised me a puppy so I know it will be ok.
We will keep everyone updated and thank you for your prayers. Also, if anyone has any great suggestions for names we need one asap!
